Helping Parents and Children Deal With a Child's Limb Deformity

COMMENTARY

Helping Parents and Children Deal With a Child's Limb Deformity

William G. Wilkoff, MD

February 25, 2021

3

After 15 years of limping and a gradual downhill slide in mobility, recreational walking had become uncomfortable enough that I've decided to shed my proudly worn cloak of denial and seek help. Even I could see that the x-ray made a total knee replacement the only option for some return to near normalcy. Scheduling a total knee replacement became a no-brainer.

Dr William Wilkoff

My decision to accept the risks to reap the benefits of surgery is small potatoes compared with the decisions that the parents of a child born with a deformed lower extremity must face. In the Family Partnerships section of the February 2021 issue of Pediatrics you will find a heart-wrenching story of a family who embarked on what turned out to be painful and frustrating journey to lengthen their daughter's congenitally deficient leg.

In their own words, the mother and daughter describe how neither of them were prepared for the pain and life-altering complications the daughter has endured. Influenced by the optimism exuded by surgeons, the family gave little thought to the magnitude of the decision they were being asked to make. One has to wonder in retrospect if a well-timed amputation and prosthesis might have been a better decision.

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